Dermatomyositis Support Group
Rangi and Stella Williams
17 Kelman Road
Tel: (09) 818 4637
Mobile: (021) 233 4497
JDMS Friends is a support group that offers information and contacts with other families who have loved ones with Dermatomyositis within New Zealand.
Dermatomyositis is one of a group of acquired muscle diseases called inflammatory myopathies. The disease affects both children and adults. Females are more often affected than males. Dermatomyositis is characterized by a rash accompanying, or more often, preceding muscle weakness. The rash looks like patchy, bluish-purple discolorations on the face, neck, shoulders, upper chest, elbows, knees, knuckles, and back. Some people may also develop calcium deposits, which appear as hard bumps under the skin. The most common symptom is muscle weakness, usually affecting the muscles that are closest to the trunk of the body.
Imagine not imagining, reaching for a thought that eludes you, or wanting to dance but your feet won't do your bidding. Stroke, Alzheimer's' disease, Parkinson's disease, multiple sclerosis and epilepsy are just some of the brain disorders that steal our ability to write, dance, and recall the precious memories of our lives.
University of Auckland researchers, Professor Richard Faull, Dr Maurice Curtis and Monica Kam have identified a "repair pathway" which adult neural stem cells travel along to repair the human brain, opening up an exciting new field of research that could potentially lead to treatments for many brain disorders.
It is estimated one in five New Zealanders will suffer from a brain disorder in their lifetime, and these can be devastating, not just on the sufferer but on their families and caregivers.
The Neurological Foundation of New Zealand is an independent body that raises money to support neurological research and education in New Zealand. The Foundation is funded by individual New Zealanders, with more than 95 per cent of contributions coming from donations and bequests.
Donations are capitalised and the interest is used to fund research grants. This system provides ongoing funding for career scientists and long-term research projects. All grant applications are internationally peer reviewed to ensure only good-quality research is funded. Last year, the Foundation gave close to $1.5 million in grants to researchers and students, covering a wide spectrum of neurological disorders.
Over the last decade alone, the Foundation has funded more than 200 projects and currently supports more than 40 research studies being run at tertiary institutions throughout the country.
This unique dedicated funding body has helped produce world-class researchers and students. It also uses the combined expertise and detailed knowledge of this group to inform the public about advances made in neurological disorder prevention and cures.